04.24.16 Some Things I Learned About Dementia

8756_415836921865239_221735958_nSince I have very little Alzheimer’s info to share and am creeping along in my own dementia journey, I’ve changed the name of the blog to Some Things I Learned About Dementia.

If you, or a loved one, is experiencing mental decline, today’s post may help you find where to start to get help.  I can’t say this is THE ONLY path but it is the one I know so I hope you can learn from this.  I don’t mind opening my life up if it will help someone else struggling and searching for help.

Also, I pulled up my big girl panties and went to Dr. Shamsnia’s office to make a stab (not not at him!) at getting my medical records and my MRIs.  More on that further down!

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10703805_824649437580941_2651549357672239530_nOn Tuesday I traveled to Metairie, Louisiana to see Dr. Melissa Aubert.  She is a Neuropsychologist in practice with Dr. Susan Andrews, who I saw 3-4 years ago.  Dr. Andrews no longer takes my insurance, but Dr. Aubert does.

She was wonderful.  We spent an hour together covering everything I could think of from the last time I saw Dr. Andrews until now.  She asked many questions about my current mental capabilities which allowed me to open up and really talk about what’s going on in that little space up there called my brain!   What a relief that was to have the words coming out of my mouth to someone who understands.

Due to the lack of information I was getting from Dr. Shamsnia I decided to pursue this before leaving town.  The10801589_855311604510077_5207705261697921312_n previous neuropsych test results showed specific areas of deficits.  Having the retesting done will provide a comparison between where I was then to my current capabilities.  I handle things better the more knowledge I have about it.  The unknown worries me more than knowing.

The testing is a day long series of paper tests designed to show strengths and weaknesses.  It was very interesting the last time I did it and I am happy to say they were able to schedule the next one for next Wednesday, April 29th!!!

I can’t recommend strongly enough how beneficial this testing can be if you have any question about your memory or your mental capabilities declining.  It’s worth a day of your time to have these answers.

Once the testing is done, the Neuropsychologist reviews all the information and her notes from our visit to come up with her final report.

Because I want to help people through sharing my journey, I will be sharing more details of my reports both from 2011 and the new ones from 2015.

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When I left Dr. Aubert’s office I drove a few streets over to Dr. Shamsnia’s office.  I prayed before I got out of my car and pulling up my big girl panties walked into the elevator and up to his office.

923515_10151922468590806_2082669326_n Seeing that there were no patients in the waiting room I breathed a sign of relief and walked up to the window.  The nice young lady and the nurse recognized me and I explained to them that I would like to have my medical records including the MRIs which I had been told were sitting on his desk.  They explained that normally they needed a form signed and it took 7 to 10 working days to have the files copied but they would go see what they could do.

I sat down, prepared to wait a while and who gets off the elevator but Dr. Shamsnia.  He looked at me briefly and said hello and went down the hall.  Whew, no face to face encounter!!  The ladies came back only five minutes later with a manilla envelope and my two most recent MRIs on disk.

I asked about the old MRIs and they said they didn’t see them.  I now firmly believe the office has lost my MRIs since several efforts to find them have been made by several different people.  How they could lose big old MRIs I have no idea, but they have.

I thanked them for always being nice and walked out.  The relief that washed over me from knowing I didn’t have to 9808_1100980976594842_8340971622499789430_ngo back there again was overwhelming.  When I got in my car I prayed prayers of Thanksgiving to God for seeing me through this dark time and bringing me out safely on the other side.  Not having to deal with the stress and frustration of working with that doctor eliminates so much of a burden from my life.  Only God will walk through all dark times with us and use it to strengthen our lifes.  Only God.

I’ll bring my records to Dr. Vales, my primary care doctor, for safekeeping, until I can find a new neurologist when we return to town next year!  North Oaks Hospital Radiology told me they have duplicate copies of the MRIs that Dr. Shamsnia can’t find so I’ll be having those sent to the neurologist at the appropriate time.

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I just got word from North Oaks Sleep Lab that they have an opening for me to have my sleep apnea test redone TOMORROW NIGHT!!!!  Whoop whoop!  When I originally called to make an appointment they didn’t have anything open for weeks until after we left.  This is again another blessing from God!  I love how He cares for me!

Okay, now on to living life!

Isaiah-41-10

 

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